As with many rare disorders, the toughest challenge for those confronting them, aside from the disorder itself, is sense of being alone. "
Our Journey With Ehlers-Danlos" is a sharp, hearfelt "web log" in the best sense. Filled with practical resources, "Our Journey" offers real hope in seeking to confront Ehlers-Danlos as a challenge, rather than letting the disease become an insurmountable obstacle. To its writers, we offer thanks!
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